Our So-Called Life.

Since Cade started bottle feeding it has not been an easy task. Then, of course, just when things came together we had to stop feeding by mouth due to silent aspiration. Now that he is eating by mouth again he is doing great, just still has a lot of liquid loss. He makes a total mess. I think I have been through every bottle and nipple since Cade's birth. His milk is thickened so the nipple has to be enlarged for him to drink within a decent amount of time. Because he actually has the desire to eat now, his suck has gotten much stronger and the liquid seems to just pour out of the sides of his mouth most of the time. I decided to look at the sippy cups and found one that seems to be perfect! No big deal to most, but a very big deal to me. It has a horizontal cut along the spout, but is firm enough for him to keep his seal. He drank it within 15 min. and did not spill at all. I am super excited! Here is a pic... He even puts his hands on the handles!

Where has the time gone??? Tomorrow Cade will be 7 months old, he is just growing too fast for me now! His progress is just amazing to watch. Last night he learned a new trick...He can clap now! It is just the cutest thing ever and I will post pics soon. He is also making so many new sounds. He babbles much louder and makes longer sounds. He has his 6 month evaluation with Early Steps this week. They will come out and see if he has met his goals and then come up with a new set of goals based on his progress. He is not too far behind, but still has goals that need to be met. We have a very busy week with a lot of appointments. I can't believe that Christmas is just next week! It has been an annual tradition to back Christmas cookies as a family, but this year I felt that we needed to start a non-food tradition. So, Carter and I built Santa's Workshop. They have the kits to make different things...I figure each year we can do some sort of craft. It is fun and we had a blast doin...

I have some catching up to do with my blog, but I will post this for now.... Cade is Prop sitting!!! How awesome is that??? He has been having great head control, but his upper body and trunk muscles were and still are not too strong. The fact that we can put him in the sitting position and he can balance and stay sitting is just fabulous! He still is not perfect with it of course, but he is doing great! Usually when I would put him sitting he would stay for maybe 30 seconds. This picture was from last night. I had him propped in the corner of the sofa sitting up, and he pulled his head and back forward into the sitting position. I put him sitting on the floor and he stayed sitting for a long time before falling over...Gooo Cade!!!!  

Here is the link to a blog entry that is worth reading!!! http://onalifelessperfect.blogspot.com/2010/11/my-deadly-appetiteupdate-on-william.html 

I have been wanting to write something to express my concerns...Here it is...I still need to proof read and make a few changes. 11.29.2010 Dear Dr. Thomas, I am writing to address the concerns I have for my son, Cade Richard, who was your patient. I do this in hopes that it will affect your future practice, and more importantly so future patients will be provided with better care. First off, just know that this letter is a result of the horrible service I have received from your staff, and not so much a complaint about you as a physician. Although, I do have to wonder how much you truly are concerned about your patients since I have yet to receive a call back from my most recent concern with Cade. I do understand that since the information has to be relayed to you through your nurses that it is very possible you may not even know about this concern. I will recap briefly from the beginning. I called and left a message for Angie in regards to scheduling Cade for a slee...

This is a good thing...Phase 1b has officially begun. Instead of having to force Cade to eat he shows interest and eats like a "normal" baby should. This really just started yesterday...I was holding him and he saw is bottle sitting on the TV tray...He started throwing a fit for it. He was fussing and throwing himself back. When I picked up the bottle to feed him, he started chuckling. I could not believe it! It was like a switch was flipped...Such a difference! If you don't know, there are phases to PWS. Cade has been in the failure to thrive phase, which is called 1a. I had posted a while back on what the different phases were in detail (I think). I will post more on that later. This is basically the normal baby phase and he will stay here for a while. The next phase is where the obesity can set in, but not the food seeking. Just meaning that they still eat normally, but everything has to be monitored closely because they start metabolizing foods different, which can le...

OK, so I decided to pull Cade's feeding tube out on my own! It was just getting in the way of him learning to eat again. He has also been congested and having a tube in your nose doesn't help that out any. So, trying to suck from the bottle, breathe, and swallow just wasn't working out for him. I had been in contact with the Pulmonologist in Baton Rouge, and they were reviewing the study before making a decision whether or not to pull the tube. Well, that was 3 days ago...I was persistent that I needed them to do whatever they needed to do in reviewing it and get back with me because I would be making a trip to Baton Rouge on the 11th(yesterday) for another appt. I was told that they wouldn't be able to fit me in anyway because of their busy schedule. Not to mention every time I call I can't talk to anyone, have to leave a message, and don't get a call back forever...I usually have to call back. Tired of it...I have GOT to find doctors here that can make accommo...

So, I feel like this is long over due...I finally uploaded Cade's birth pictures today. They were on a different camera and I never really cared to upload them before now. As horrible as that sounds, I just didn't want to re live some of those pictures. Things are very different now though, and I can truly appreciate every single one of these pictures. Honestly, I wouldn't change a thing! Enjoy! Make an on-line slideshow at www.OneTrueMedia.com

This is Amazing... http://www.youtube.com/watch?v=ofgjtGra3I8

Shands Childrens Hospital at UF in Gainesville! Ok, so we are home from our crazy trip to Florida! Our flight schedules were nuts, but we managed. I'm so glad we crammed time for that swallow study because Cade passed! He still aspirated a little bit with thing liquids, but swallowed fine with Nectar thickened liquids. The process with swallow studies is like this- They try different consistencies to see what you can tolerate best. In Baton Rouge when Cade had his study he aspirated on thin, Nectar thickened, and Honey thickened liquids. There is one next step up which is pudding thickened, but obviously he can't drink something with the consistency of pudding out of a bottle. That study was about 5 weeks ago. In Florida he did relatively well with thin, just a little aspiration which says a lot! For now we will use something called Simply Thick to mix in his bottles and it will get his formula to Nectar consistency. He is also old enough to start solids, so we will be work...

There is an upcoming show on Discovery Health called, "My Deadly Appetite."  "Born with Prader-Willi, a rare incurable syndrome, Will feels starved constantly and has bouts of physical aggression. At 280 lbs and kicked out of school, an intense inpatient treatment program hundreds of miles from home may be his only hope." It is airing on Discovery Health this Wednesday, November 3, at 10pm. Sounds like Will is one who is more severely affected by PWS, but his story is an important one to tell. We have no way of knowing where any of our children will be on the spectrum of this syndrome, and we're all in it together. I always have mixed feelings about these kinds of shows, because I'm not sure how they'll portray the syndrome or the person with the syndrome. But I'll be watching. Join us!

It has been a while since I posted! I have been incredibly busy!!! While my main focus has been on Cade the past 5 months, I can't forget my Carter. He will be 3 years old tomorrow! I just don't know where the time has gone...He is a big boy now and so independent! Ahh, Bittersweet! So, we had our follow up in BR yesterday with Cade. The pulmonologist was very impressed with the difference in Cade's tone and alertness. He can tell what a difference the nutrition has made for his total wellness. He also reviewed the sleep study results again with me and stressed the severity of his obstructive sleep apnea. He said that if Cade was a "typical kid" and he had that bad of a sleep study-he would automatically say he would need an alternate airway...as in Tracheostomy...But good news is he is not "typical" and he will grow out of this! That just gives you an idea of how bad he is obstructing while sleeping. The pattern is that as the tone improves so will the ...

So, the inevitable happened. Cade's feeding tube was pulled out Monday. He is on continuous feeds..which means...he eats for 20 hours a day and can be off for 4. So, I knew I had a 4 hour stretch before he needed to eat again. I thought it would be just as simple as going to the ER and getting the tube put back in. Not so much. Little did I know that no ER in Houma or Thibodaux would put it back in. Cade has a TP tube which bypasses the stomach and goes straight to his small intestine. It has to be verified with x-ray for placement after being put in. It really is not that big of a deal to put in! It is put in just like an NG tube besides the fact that you push it a little further with a syringe and take an x-ray for placement...Voila! I could do it myself! So, from now on if and when the tube comes out again we have to go to a Pediatric ER. Children's Hospital or OLOL. Everything is fine now though! The tube is a bit of a pain, but it is not SO bad. Cade is still happy and th...

These are some pictures from the Hospital... He could not figure out what that was on his arm Watching the LSU game! Playing with his IV again He had a mobil for his crib and the nurses brought him a Build a Bear Home and Happy! This was right after his tube was pulled out... (I had to hurry and get a pic before the tube was back in)

Well, after being in the hospital for 8 days and nothings getting accomplished, we are home. The doctors here just kept insisting that without the Nissen procedure and just getting the g-tube Cade would still aspirate and reflux. With that being said I was not putting Cade through surgery for something that would not fix the problem. Dr. Miller did not want the Nissen and I trust her 100%. I know these doctors here know what they are doing and are very experienced, for a typical child.  Dr. Miller knows PWS, they don't here. That just makes such a huge difference. So, we are home with the NG tube for now. The doctors seemed to think that it was OK that we wanted to come home and make our decision. The pulmonologist did not like the idea because of Cade's obstructive sleep apnea, he did not want something else obstructing his airway. I don't think we have much choice at this point though, so Oh well! He also sent us home with oxygen at night for Cade. The whole idea of that...

I thought we had somewhat of a plan in place, but no. Doctors here are stuck on doing the Nissen along with gtube. There main concern is aspiration and even with gtube inserted Cade can still aspirate and reflux. It sometimes makes it worse! Dr.Miller says not to do it, these doctors say to do it and here I am not knowing what to do. One big difference...Dr.Miller KNOWS PWS, these doctors DON'T. They are doing the protocol for a "typical" baby. At the same time though what these doctors are saying does make sense and that is why I am confused as all hell right now. If that even makes sense. I am so dead set on all Cade's care being done in FL...I think I need to move! (Yeah right) Someone needs to get it together or we will be out of here AMA!!!

On my phone again...Ok, so I will try again to fill everyone in. Lately things have been goin rather slow around here. Doctors have been consulting with cade's doctors in FL to come up with the best possible plan for Cade. So, it is ok that things are taking a while. I would rather everyone be on the same page rather than rush into surgery. All the doctors here arw being very thural and making sure things are done right. Dr.Miller does not want the Nissen procedure done because too often she sees patients not being able to control their blood sugar after. On top of PWS she does not want to have to worry about blood sugar levels dropping(and neither do I)! So, the G-tube will be done and we will control reflux/aspiration with max reflux meds. Results of sleep study have also been being discussed. The pulmonologist described Cade's sleep study as "off the charts" He has severe obstructive sleeo apnea. A typical baby obstructs about 2 times per hr and Cade was ib the 70s...

Ok I am updating from my phone so it is kind of hard. Cade had his sleep study last night then was scheduled for a swallow study this morning. Well, the swallow study showed that Cade was aspirating...silently-obviously because we had no clue. It is no longer safe for Cade to take bottles by mouth due to aspiration. If food continuously goes straight to his lungs he can get very sick. He will be getting a g-tube, which is surgically put into his stomach. We will work very closely with feeding specialists to get him to tolerate liquids better then eventually we can pull the little button out! He will also have another procedure at the same time called a nissen. It is to help with his reflux issues because reflux causes aspiration and aspiration irritates reflux. Main concern now is anesthesia. PWS patients have to be closely monitored with anesthesia and sometimes have trouble coming out. We are praying and hoping all goes well! I can update in more detail later when I can get to a comp...

So, if you haven't heard yet there was a Huge breakthrough in PWS Research yesterday. Basically, some very Smart scientists are now able to research and study PWS live brain cells. (Thank the Lord for them!) "These cells (which were made by transferring a special set of genes into skin cells from a person with PWS) have the ability to change into a variety of cell types in a dish - muscle cells, pancreatic islet cells, and importantly, neurons. Thus, we now have an ongoing supply of PWS neurons - we can study how their gene expression differs from normal, whether their metabolism is altered, whether neuronal migration and/or interaction is altered, and how their neurochemistry differs from normal. Once they figure out how PWS neurons are different, they can throw some small molecules, existing drugs, new drugs, etc onto them and see if they can get them to behave more like typical neurons. This is an "in vitro" (in the dish) system, so there are some limitations (ju...

This is the ceremony where they presented the check from the APX Alarm contest we won...Great explanation of PWS! 

I just wanted to post and say how happy and blessed I feel. Cade has made so much progress in these past four months and is so full of life now. He is so happy and brings so much joy. Carter has been such a good Big brother and I know he will help Cade exceed all his expectations. Cade is so aware of him, and his eyes are always fixated on him. I can already see how much he looks up to Carter. The love is truly so innocent and unconditional!  I have been told and now see for myself that Carter is really Cade's best therapy. Cade had his 4 month check up last week and everything went pretty good. My big boy is now 10lbs 11oz. I can't believe it! I never thought I would see the day. His ped. said his muscle tone is better than the PWS patients she has seen. ??? Guess that is a good thing! She said everything looks great with him. She did notice that his posterior fontanel(soft spot in back of the head) is still open. It usually closes by 2 months of age. She wasn...

http://unexpectedmoments.smugmug.com/Babies/Cade-Joseph/13864686_rzieG#1016853721_wgW9c

...4 Months... Such a Happy Little Guy!!! Loves when Daddy makes him Fly... Pictures can't express how excited he gets! All ready for the Saints game...Who Dat!!

Just some info for anyone who wants to know how this very complicated genetic disorder works... Chromosomes and Genes: The Basics To understand the genetics of PWS, it helps to have a basic understanding of chromosomes and genes. Chromosomes are tiny structures that are present in nearly every cell of our bodies. They are the packages of genes we inherit from our parents. Genes contain all the detailed instructions our bodies need to grow, develop, and function properly—our DNA. Specific genes direct our cells to produce proteins, enzymes, and other essential substances. Each of our many genes is located on a specific chromosome. Most of our body’s cells contain 46 chromosomes—23 inherited from our mother and 23 from our father. (Egg and sperm cells normally contain just 23 chromosomes, because those are the cells that join in conception and provide the baby the right number of chromosomes.) Twenty-two of the chromosome pairs are labeled with a number based on their size (chromosom...

So, I have been knowing that Cade would get sick sooner or later, but I was hoping for later. He is congested and that becomes much more of a problem for him since he can't cough. Mostly because of his low tone he doesn't have the ability to cough the mucus up, so it just sits in his airways. He rattles horribly, but the doctor said it is not in his chest. Things have to be caught early and treated or it is very is for phnemonia and infection to set in. So, my poor little boy is on Antibiotics and breathing treatments. We go back tomorrow for a re-check to make sure it has not gotten any worse. Good News is Cade weighs 10 lbs!!! I have been weighting for him to hit the 10lb mark for what it seems like forever. He has already outgrown some of his Newborn clothes. I thought that would never happen. All I have wanted since his birth was for him to hurry up and grow. I am very happy that he is progressing and growing, but I know before I know it he will be growing so fast and I wil...

This is an article I have copied from http://www.fpwr.org/ , Foundation Prader Willi Research. The past and present research projects that are being done absolutely amaze me! I just thought you may want to read a little about this current research project. :) Activation of the maternal allele Prader-Willi syndrome (PWS) results from inactivation of a domain on the paternal chromosome 15 while the same domain on chromosome 15 that is of maternal origin is normally inactivated. This situation in Prader-Willi patients is therefore associated with complete silencing of a relatively large number of genes that are located in this domain. This silencing of the genes is therefore implicated in the various symptoms observed in Prader-Willi patients. It is presumed that the genes of the domain on the maternal chromosome 15 are intact and perfectly normal but unfortunately dormant. The question is, how can be wake these genes up? Answering this question might not be simple, but we think th...

So, It has been 5 weeks since Cade started GH and Dr. Miller said sleep study needs to be scheduled after being on them for 6 weeks. She gave me the name of a Pediatric Pulmonologist in Baton Rouge that has experience with PWS. He worked under her for a couple years in Florida. So, I called 4 weeks ago and had to leave message for the person that handles them to call me back. A week went by she never called, I called back and got voicemail again...Her voicemail says "If this is about a message that you have already left, please do not leave another message." Or something to that effect...So I have been trying to be patient. Well, I called back about a week ago and said I wanted to talk to her, not leave a message. I talked to her, explained my situation and that I needed to get my son in for a sleep study asap. She said she would be getting with the doctor and calling me back because we would need a consultation first. Another week later, and still no call back.....I can'...

Well, It has been a while since I have posted. I do have a few updates. I spoke with Christy, Cade's Dietitian in Fl and she wants Cade to start taking 3 ounces every 3 hours. So, we are and he is doing great with it! We went to the Ped. last Thursday, and he weighed in at 8lbs 15oz. (I will just call that 9 lbs :) and he was 22 inches long. He is def. growing, still slower than what would be considered typical..but he is making progress! As of today, he is now taking all 3 supplements...Fish oil, CoQ10, and L-Carnitine. I have not noticed a huge difference in awake time and energy yet..but didn't really expect to right away. Cade's main goals right now in PT and OT is his ability to reach and swat/grab at toys and gain head control. His arms and upper body are much weaker than his legs. We have been working with him and you can tell he wants to grab them so bad, but just can't get the coordination to do so. He will get it in no time! He loves to eat his hands and arms ...

Yesterday, we decided to go to the Splash Park in Bayou Vista. We only stayed for about an hour but Carter had lots of fun! It was a really cute little place for kids. They had plenty of shade for Cade, and of course he was content like always. Carter & Cade with their shades on Cade chewed on a frozen teether to keep cool Dr. Miller called in the prescription L-Carnitine supplement for Cade to start. His first dose was yesterday! There has also been a lot of talk lately on the message boards about this "cactus plant" that is under research to suppress the appetite in people with PWS. This extract is now being studied in the PWS population. Substances and medications don't always affect people with PWS the same as they would affect you or me. So, the research will tell if it is safe or effective for PWS. There is an Australian family who has experienced very good results from it. So, hopefully the research will be a success, and by the time Cade is food...

3 Months Old (HaHa, I just noticed he's saying PEACE!) I can't believe it, 3 months old already! Well, I have been trying to capture every little moment, so here are some pictures I thought I would share!   All smiles in the morning... Working on his head control Lifting his head He LOVES his mobile!!! Such good stimulation for him!

"At the end of the day, faith is a funny thing. It turns up when you don't really expect it. It's like one day you realize that the fairy tale might be slightly different than you dreamed. The castle, well, it may not be a castle. And it's not so important that it's happy ever after, just that it's happy right now."

Well, Cade went for a weight check yesterday, and to get the rest of his immunizations. He is weighing in at 8lbs 6oz...a 6 oz gain in 10 days...that is about the rate he has been gaining. He is getting to be such a big boy :) I also decided to just finish up the rest of his immunizations. He got 3, and he has been real sleepy as a result. I think I will go back to spacing them out for the future. We no longer have to go for weekly weigh ins. His next appointment will be for his 4 month check up. We had an appointment at Ochsner to see an ENT. Our experience there was great! I was very satisfied, and will also be seeing a Pediatric Gastro there to monitor Cade's reflux issues. Cade seemed to like it too...While waiting for the doctor to come in he was literally cracking up (without making noise), if you can imagine that. It was hilarious! My Mom and I were laughing so hard we could barely contain ourselves. He had the cheesiest grin, and he would do this little chuckle. I...

Well, we started the GH Friday, and so far so good. It is really easy to do. I just need a little help holding him so he doesn't move. He is on the lowest possible dose for now, and we will slowly find what dose is right for him. Every child is different, so it is not possible to know what dosage he will need right away. Well, we have PT coming this morning at 9 am, so I will post more later. Just wanted to let everyone know that we started the GH!!!

PWSA (USA) CONFERENCE 2011 A contract has been signed with the hotel for our upcoming conference to be held November 11-13, 2011, in Orlando, Florida! The Buena Vista Palace Hotel is located on Walt Disney World property across the street from the Downtown Disney Marketplace.   How cool is that?!?! I better start saving now...I would love to be able to go!!!  

OK, so we received the GH in the mail a couple days ago. Now, I am just waiting to be contacted by a nurse in our area who is trained on how to give them. She will come out to the house and go over everything with me. I was suppose to be contacted within 24-48 hours after receiving the Genotropin. It has been about 46 hours...She better call soon :) It seems real easy to do, and it doesn't intimidate me a bit. They are all ready to go, you just twist to mix the powder with the solution and that is it. So, this will be a nightly injection for the rest of Cade's life. They may be stopped for different reasons, but for best results he should remain on them forever. Cade had a private therapy session yesterday, and it went real well. She hadn't seen him in about a month and thinks he is doing great! He was smiling and cooing for her. She noticed much more range of motion in his neck. In about two weeks we will finally start his Therapy with Early Steps. It took a while to get t...

 

Here is another article about Madison, Clint Hurdle's daughter with PWS...Watch the video and read the article on her...She is the poster child for PWS! 9NEWS.com Denver Colorado's Online News Leader Catching up with Madison Hurdle

The APX Alarm Gives Back contest totals are looking awesome for PWS!!! I am so excited to see the totals growing and to know that so much money will be donated to PWS Research! For those of you who don't know about this, it is a contest going on and there is a winner for each category/region. You can follow this link to see the totals as of today.... http://blog.apxalarm.com/2010/apx-alarm-apx-vote-totals-72310/ Add them as your friend on Facebook, and you can vote daily to help win lots of money for PWS. You can vote one time for each region. Thanks in advance for all of your votes!!!

Cade had his 2 month check up today. He is really 10 weeks tom. so we are a little behind, but hey what aren't we behind on...Good News is he weighs 8 lbs. :) That is a big jump. Last Tuesday he weighed 7lbs 7oz. His formula recipe is still concentrated and has been increased to 2.5 oz. Must be working!! I decided to space his immunizations out, so he only got one today. With PWS there bodies sometimes metabolize medicines differently. Not all the time, but just to be safe I decided to only do one today. We will go back once a week until he gets them all. Anyways, this weekend is the repeat airing of Extreme Makeover: Home Edition that features the Starkweather family. They have three boys, the youngest of whom has PWS. It is a great episode that raises awareness for PWS! Everyone should tune in this Sunday. :)

Finally got a picture of that little grin... Isn't that just the cutest thing EVER?!?! I love my Boys!!!!

I know everyone is just dying to know how our visit went, and I am just dying to tell you! It was the best experience ever, more than I could have ever imagined. Dr. Miller took us up to her clinic area and we sat in a room with her and Christy, the Dietitian. Our appointment was for 9:30 and we talked with them for over two hours! We left at 11:45. First we told her our story, and then she laid everything out for us. She went through all of the stages of PWS in detail, and we just casually discussed questions and concerns. There is nothing that she does not know about PWS, it is truly her passion. She is a research doctor too, so she is up with all the happenings on the research. Dr. Miller even sees patients from other countries!! She said Cade looked great to her, and she was very impressed at how active he was. She is very proactive and positive. She said that Cade will be just fine in society and there is no reason to think he won't. If we follow her and her team's treatm...

Got everything packed (hopefully) and all ready to go! Just me, my Mom, and Cade. I will really miss my Carter, but I know he will have much more fun here. Still don't wanna be so far from him :(  Good thing I will be home Saturday! I am so ready to get there and get back home. We have an appointment at Children's Hospital to see and ENT tomorrow morning, and then we are heading out after. We will see Dr. Miller along with a Registered Dietitian Friday morning around 9:30 am. Then we will be heading home Saturday. I am so lucky to have such great family to help me out through all of this! I truly have a great support group, and I am forever grateful!!! I will be updating soon with what I know will be great news... :) 

Cade is getting a little personality! When I talk to him he kicks his little legs and waves his arms. It is so cute to see him respond! At his 5 o clock feeding this morning he was wide awake so I was talking to him, and he made the sweetest little cooing sound. I couldn't believe it, I thought maybe I was still half asleep. Later on I was telling my Mom about it, so I started talking to him to see if he would do it again and he did! It was the sweetest thing ever...just wanted to share my joy!

I went in to check on Cade and this is what I saw... (Carter likes to give him toys periodically!) How nice of Big Brother to share his Buzz Lightyear...Priceless!

Well, we had another weight check Thursday and Cade weighs 7lbs 1oz. So, he hasn't lost, but he hasn't gained much either. He is 7 weeks old and only 7.1 lbs. Of course that goes along with the PWS though, so it is only expected. Just about 90% of infants with PWS are not able to feed by bottle. They usually are tube fed for at least the first 6 months of life. It was a struggle for him to learn, and sometimes still is. Now, I see why most babies have the tube. They can get the adequate nutrients and gain weight without working so hard and burning calories. Anything that he does burn calories, and eating is a real workout. So, we are concentrating his bottles now to make each feeding 24 calories instead of 20. We will see how that works! By concentrating it the formula is thicker and he has to work harder to suck, which again burns more calories...Never knew feeding a baby could be so complicated until now. I am so ready for him to be able to start Growth Hormones and get stron...

I talk with other Moms on the PWS message board, and get so much great info. Well, I was telling one of them about how I am waiting to get in with Dr. Miller. Her daughter sees her, as well as many of the others. She said the best way to get in touch with her is by e-mail, and she gave me her e-mail address. So, I e-mailed her and told her about our situation, and about how I wanted to get in to see her ASAP. She immediately responded to my e-mail and this is what she said.... Maegan, Thank you for your email. I am more than happy to see your son whenever you can come to Gainesville. You must have spoken with one of our secretaries who is not dedicated to dealing with my kids. For future reference Debbie is my scheduling secretary and will always get new babies in to see me ASAP (her direct # is 352-334-0877). Where are you located and when could you come to Gainesville? I am having a new baby clinic this Friday (7/2) but if you are far away that probably won't work, but if it...