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Update...

On my phone again...Ok, so I will try again to fill everyone in. Lately things have been goin rather slow around here. Doctors have been consulting with cade's doctors in FL to come up with the best possible plan for Cade. So, it is ok that things are taking a while. I would rather everyone be on the same page rather than rush into surgery. All the doctors here arw being very thural and making sure things are done right. Dr.Miller does not want the Nissen procedure done because too often she sees patients not being able to control their blood sugar after. On top of PWS she does not want to have to worry about blood sugar levels dropping(and neither do I)! So, the G-tube will be done and we will control reflux/aspiration with max reflux meds. Results of sleep study have also been being discussed. The pulmonologist described Cade's sleep study as "off the charts" He has severe obstructive sleeo apnea. A typical baby obstructs about 2 times per hr and Cade was ib the 70s per hr! That is pretty disturbing! All doctors do believe that hopefully with proper nutrition and increased muscle tone the obstructive apnea should improve. It is very important not to obstruct during sleep, it doesn't allow your brain to grow properly. Proper nutrition also helps brain development and growth. For his height and weight he is still off te charts...not even in the 1 percentile. But for his head circumfrence he is on the charts...good to know that his brain is growing! I will continue to try to keep my blog updated...

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