Our So-Called Life.

Life for our family has been such a whirlwind lately. Geez, where do I start?  I am finally wrapping up totals from our One SMALL Step 5K and proud to say we have raised about $24,685.00 !  I am so thankful to those that stepped up and worked hard to help us achieve our goal! We had another great race day and had some wonderful families that shared it with us. It is always great to meet and mingle with new PWS families who are eager to be part of the bigger picture!  And of course, the people of the community whom have no connection to the cause, but just come out to run a great race or show their support. That is always comforting as well!  Then, my personal family and friends who I can always count on to be by my side...Love you all!  I have to say it has been nice to get a break from our daily therapies with Cade.  As of May 14, Early Steps ended and so now we just have what we were doing outside of Early Steps, which was Speech 1x/week ...

Another birthday has come and gone for Cade. I can't believe he is 3 years old! The first two years were filled with many ups and downs and I am certain we will start seeing many more ups now. He has developed the best personality and is such a joy.  He had a great birthday party Saturday, despite the weather...family and a couple friends made it all worth it. Yesterday was his actual birthday and we continued the celebration. Lots of singing Happy Birthday which makes him giggle and squeal with excitement! We ended the day by going to Chuck E Cheese. No pizza, just games...he loved it!  So serious... So serious...again Dancing away to the Bob the Builder song...He loves music! We are beginning a new journey now that he is 3. He has had to say goodbye to all his Early Steps therapists and now will get minimal services through the school system. That will all start up in August when school starts. This week he has gotten to meet with the...

Today was my pre-admit appointment  I had not been back to The Women's Center at Terrebonne General since the day we so eagerly brought Cade home from the NICU. I thought nothing of this appointment up until today when I turned in the parking lot. I was instantly hit with vivid memories of 3 years ago when every day consisted of going there.  I pulled into that parking lot, circled around for a parking spot, and walked through the same door, and went up to the 2nd floor...For  28 days straight ....   I did all those same things today, but never imagined those feelings were still so real. When I walked through the door the smell hit me in the face and immediately took me back. I got nauseous. I walked to the elevator went to the 2nd floor and tried to avoid even looking towards the hall where the NICU door is. The whole time talking to the lady about pre-admitting and listening to hospital procedures and things I had all heard twice before, my mind cou...