Our So-Called Life.

So, I think race things are moving along nicely so far. Don't know how much Facebook invitations count, but have had a lot of feedback so far. I am hoping I get more feedback from previous sponsors about wanting to sponsor again. I am also looking for businesses interested in new sponsorship. So, if anyone has a hook up, let me know :) Today, I saw first hand how good hearted some people are. Pure motivation in my eyes. I mean lets face it, everyone is busy with their own lives. Just with the normal day to day tasks that have to get done. Then, to see people who take time out of their day to benefit me, my son, and the whole PWS population it is remarkable. Especially, when their is no personal connection. I am so thankful for people like this. It is why our mission is successful. It is easy for me to advocate and really work hard to raise money for this. It affects my son, of course I am going to do everything in my power to take control of what I can...since not much is in my co...

Feeling the need to blog....Two topics I want to blog about...One Small Step news and my brother's car accident. I will blog about my race later...  So, I remember when my brother, Chase, who is now, 18 first got his license. I felt like a Mother worried sick about him. Although he is a very good kid and much more level headed than I was at that age...I still knew what other people were capable of and then there are truly accidents of course. He seemed so new and just unaware of the world. I totaled my car a couple weeks after getting it when I was 18. Also, had a couple other accidents. I know how quick things can happen...it is so scary. Well, The worry wore off and he has been driving a couple years now. Don't even think twice about him driving anymore.  Then it happens...just about an hour ago I got a call from him...he said he just wanted to let me know he got in a wreck. My heart sank to my feet and I fel...

Today was our first Mardi Gras Parade of Carnival season. Although the weather has been pretty ugly around here lately, today it was a beautiful day! We left Cade at Gam's house since he has yucky pink eye again. :(  His whole underneath of his eye is swollen and red. It looks more like he got punched in the eye. Poor buddy. It gave Jake and I some one on one with Carter though and we had lots of fun. We got to spend time with good friends as well. Carter really got into the parade this year. After he caught a cool sword though, that was it...he was ready to go. His face was priceless when he got handed the sword. Oh, the joy that a crappy, little plastic sword can give a boy. I love that kid!

Yea, I am way past due on this but better late than never...right? OK, so we left last Sunday for Florida and came home this past Wednesday. We were undecided whether we would still make the trip being that Cade had just been through a rough time with the RSV hospitalization. He was 100% better so we decided to go for it. We did cancel the sleep study being that he was recovering from RSV it would have been a complete waste. We started our visits off with Sara Plager, the Speech and Language Pathologist. She deals with PWS patients all the time, so we wanted an evaluation with her to see where Cade was at with Speech. He cooperated, for the most part. He has such a nice vocabulary, but only uses it when he wants to. He obviously gave her enough of what she wanted to see though because she was very pleased. She said to keep doing whatever it is we are doing. She doesn't sugar coat things at all, so hearing this made us feel really good. Speech is more often than not a big delay in P...