Our So-Called Life.

I'm posting tonite from my phone because I am too tired to get the computer. If words are spelled wrong I am sorry...can't use spell check on my mobile blog. Dumb! Anyways, as most of you know we have been home since Tuesday. Thanks to all of you who lifted Cade up in prayer. We really appreciate the support more than you know. He is getting better each day.I have been watching Cade like a hawk...his breathing is not totally normal yet. Guess it doesn't help that today he fell on his head and panted for a half hour or so. We were at my parents and my brother was singing this ridiculous song and Cade was standing on the barstool( I know, accident waiting to happen) i was too busy watching my brother and bam...poor guy fell. I feel like a horrible mom when that stuff happens, but it happens. I got another phone call today and it was very promising. It was a response to one of my many e-mails telling our recent incident and story. I will give more specific details as they come...

Guess I will start from the very beginning...10 days ago I brought Cade to the Pediatrician because he had been irritable the night before and I wanted to be sure to stay on top of whatever may be coming on. I knew it had to be a touch of something Carter had, since he had been sick for about a week prior. No real diagnosis for Carter, tonsils were huge and ugly, Strep swab was negative so it was said to be tonsillitis and gave antibiotics. When Cade was seen on the Friday, his throat looked nasty and so they swabbed, Step was positive. Confusing, but we figured well that is what they both have, just must have been too early to show a positive when Carter was seen. Ok, so both had antibiotics through the weekend. Carter's energy and personality started to come back, but he still had a horrible cough. By Sunday Cade was starting to get a little congested. Monday we woke up and his breathing was really rapid. I watched it and eventually got worried...

Cade's doctors and I went through hell with Blue Cross trying to get the vaccine to prevent RSV approved. He had it last year, but this year criteria wasn't met. Hi Aimee, I know it was not your call to deny my son, Cade of the Synagis but I have your contact info. I would really like this to make its way to the doctor I spoke with regarding his decision to "follow guidelines" and deny Cade. Cade didn't "meet criteria" yet now we are in the ICU because he is in Respiratory Distress due to, yep you guessed it...RSV! As a Mom of a child with Special Needs it is my duty to fight for my child to get whatever he can to help prevent situations like this. Knowing there is a vaccine that could have prevented this battle we are facing infuriates me! We PAY insurance for a reason and to be denied something that is so critical to my child is nonsense. Underlying respiratory issues, history, Prader-Willi Syndrome( educate yourself on this syndrome, you may not h...

So, Carter has been sick for about a week now..slowly getting worse. Finally went to the Doctor Tuesday when he woke up with pink eye in both eyes. The outcome was Tonsillitis, we have been treating with Antibiotics and drops for the pink eye(Oh what fun that is). This is the sickest I have seen him..probably ever. So congested on top of it all. Poor kid. I was contemplating on taking him back in before the weekend to see if he needs something more. Then, after coming home tonight and noticing both of Cade's eyes starting with pink eye..That pretty much confirmed it. They are both going in and hopefully Cade doesn't get the congestion part or at least not nearly as bad as brother. That party worries me more than anything. Congestion is our worse nightmare..as you know. The low muscle tone just makes it incredibly hard for Cade to fight. I hate the thought of him getting sick..but I knew it was to come. So, that is how I am feeling tonight. Just blah with both boys sick and the...

Ah, I really have had so many blog topics to write and tell you about, but finding time to actually sit down and do it is the hard part. I am slacking so bad. I didn't blog about Christmas, or New Years....I missed all of it. I am not going to recap, I will just pick up where we are lately. Well, as you saw in the previous post Cade is starting to walk..Yay! We have pushed for this for so long it seems. He definitely still has to perfect things and find his balance. He is not independently walking yet for sure. Just baby steps...very cute, giggly baby steps. He thinks it is a game now when we say Cade, walk to ...whoever... I am glad he no longer despises it. He is gaining his confidence, slowly but surely. I think something else worth blogging about is that I was able to find some part-time work. I was never really looking, because although extra income would be nice I know I just can't commit to the typical set hours, set schedule type position. I just happen to see a FB upda...

OK, So did everyone get to see this on Facebook?? Cade did it, He took 7 steps yesterday!!! This is such an awaited milestone. It is of course just baby steps and he still has to master and accept the whole walking thing. But to see him actually do it was just surreal. I knew he was capable, and knew he would do it one day...but it was still wonderful. When you wait 19 months for your baby to walk to you it is breathtaking when those first wobbly steps begin. Oh and guess what...we practiced already today and nope, he didn't forget. Yay! Be on the lookout for lots of walking videos coming soon to a blog near you....