Skip to main content

Shove It, BCBS!

Cade's doctors and I went through hell with Blue Cross trying to get the vaccine to prevent RSV approved. He had it last year, but this year criteria wasn't met.



Hi Aimee, I know it was not your call to deny my son, Cade of the Synagis but I have your contact info. I would really like this to make its way to the doctor I spoke with regarding his decision to "follow guidelines" and deny Cade. Cade didn't "meet criteria" yet now we are in the ICU because he is in Respiratory Distress due to, yep you guessed it...RSV! As a Mom of a child with Special Needs it is my duty to fight for my child to get whatever he can to help prevent situations like this. Knowing there is a vaccine that could have prevented this battle we are facing infuriates me! We PAY insurance for a reason and to be denied something that is so critical to my child is nonsense. Underlying respiratory issues, history, Prader-Willi Syndrome( educate yourself on this syndrome, you may not have been so quick to deny Cade 3 times.), narrow airways, low muscle tone...Hello...Criteria is MET in my opinion!

If it were your child I bet you would think twice.

(Here is where I inserted a pic of Cade all hooked up in the hospital but I can't post it here for some reason.)






Sincerely,
Maegan Richard
Mom to Cade Richard
985.860.4080

Comments

  1. Maegan, I'm furious for you. Dean was denied it as well (under United HealthCare) despite FOUR appeals and fortunately, he did not get RSV, but poor Cade!!! Praying for a quick turn-around for your little man. :( The respiratory stuff sucks.

    ReplyDelete
  2. I love the idea of attaching a picture. Speaks those 1000 words.

    ReplyDelete
  3. It is an infuriating battle fighting with insurance companies & pharmaceutical companies for Synagis. When I worked for a pediatrician, I watched babies get denied time after time & just like Cade end up with RSV and a hospital stay. It's sad that the insurance companies control so much especially when parents pay so much to get the things like this that their children truly need. Sorry to hear the same story coming from you, but glad to know Cade is recovering.

    ReplyDelete

Post a Comment

Popular posts from this blog

Trust the process

So, today has been mentally taxing on me. From finishing up my Summer classes and final tests, to losing a dear, fellow PWS Mom friend, and then taking Cade to his first swim practice for the Special Olympics. I've shared extreme highs and extreme lows today, but as I unwind tonight I feel compelled to share this with whoever decides to read it.  Some of you may know this about me, but most probably do not. I have always felt a strong attraction to working with those with special needs. It just always felt right and from a young age I remember looking up local jobs and volunteer opportunities..always searching for something to fulfill that desire. I was actually enrolled in college for Family and Consumer Science and was planning to go into Special Education. I had taken the Parapro assessment and actively looking for Para jobs. Then I became pregnant for Cade and life had other plans. Given my role now to Cade, isn't it ironic? OK, so here is an e-mail I dug up from my in...

Tired and Thankful

I am the parent of an amazing boy. He is 9. He is smart, funny, and happy. I am the parent of a child with Prader-Willi Syndrome... PWS is a complex developmental disability that results from a defect on the 15 th chromosome. Because of an abnormality in the area of the brain called the hypothalamus, these individuals face challenges in learning, behavior and controlling their appetite. The message of fullness never reaches their brain and they are always hungry. The intensity of their food drive can vary but all require support and understanding if/when they are exposed to food or they attempt to seek food. Food security must be considered and provided in all environments and at all times. While I am first Mom to Cade, just as importantly I am his advocate in every aspect of his life for his rare disorder. I am tired. Remaining humble and thankful for all of Cade's progress is so very hard in the midst of advocating. Some days I feel as I...

Happy 5th Birthday Cade!

I can't believe we are celebrating your 5th birthday today. It seems like just yesterday I was awaiting your arrival. Boy, what a whirlwind it has been since then.  I have watched you go from a tiny, helpless newborn to a boy who already has his mind made up about just anything. You have taught our family so much about being strong and loving endlessly. You bring opportunities that I never imagined possible when I first held you in my arms. Life-long friendships have been made because of you. I will always encourage you, respect you, be your biggest fan, your advocate, and your supporter. I will always hope for a brighter, more accepting tomorrow. But above all, I will always love you for who you are.