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Showing posts from May, 2012

End of PWS Awareness month ends with a Bang!

These are my Parent's neighbors who arrived at Disney World today and decided to wear their One Small Step shirts to show support for our little Cade man! I bet they don't realize that today is the last day of PWS Awareness month and this is by far the best awareness tactic! I just know  one of the million people who was standing behind them in one of the plenty lines I am sure they stood in today read their shirt...some may have even googled One Small Step or Prader-Willi Syndrome to get more information out of curiosity. This is what PWS Awareness is all about! These guys are an awesome family who have helped us throughout our journey so much! Huge thanks goes out to the King family, You guys really ROCK !  

My Graduate.

My Carter man had his Pre-school graduation today. These past years have flown by way too fast. Starting school seems so big. I am not ready. I know he is though, which helps me cope. I have already warned him that he will never ride the school bus and he was not happy about that. Hehe. I cannot put my baby on the bus with all those big kids..oh no! He misses the cut off for Kindergarten, so he actually will be going to Pre-K instead of Kindergarten which stinks, but oh well. His little performance tonight was great. His class walked in to the traditional graduation song with their little graduation hats on...Aw. Then they sang 3 songs for us. I love my sweet boy!

POV!

What a great way to kick of Prader-Willi Syndrome awareness month?!? May 1st began PWS awareness month and our Point of Vue debut was a success. I had no clue we would be on the cover so that was a huge surprise to see, well hear...I think I was the last one to get a finally see the magazine. I am so thankful we had the opportunity for the awareness that this has brought to our area. Those are the sweet pictures above and here is the article link below. POV Story. So much awareness, I feel so completely blessed.  Also, some more exciting news...Jake picked us up a copy of the local Fitlife magazine today because there is a story about Alison Desmore with PWS and race info as well. So, another way to gain awareness...which is exciting, but here is the other part. Jake says, there is a picture of a kid in there that looks just like Carter. It was an article pertaining to the Triatholon Carter participated in last year and it IS Carter! LOL We were so happ...