Our So-Called Life.

Jake and the Never land Pirates, And Meeeee!   That is Cade's new show. Oh and that is not Cade pictured above, that is Jake the Pirate! (HaHa)    He still loves Dora and LOVES Diego..well he loves a lot. The kid just LOVES TV..(I know not a great thing), but hey I really have bigger issues to be concerned with at the moment. If Cade had his way, he would watch "his" shows 24/7. I absolutely love the way Cade has been singing along lately to his favorite shows. It is something rather new and even though for sure only I can understand him..I still love hearing him. He is trying and if his nose would be plugged for the words that he needed nose occlusion, his singing would sound wonderful.   Cade and Carter have been playing Hide and Seek for a couple weeks now on and off. They both love the thrill of seeking one another. Cade can never wait for Carter to find him. He will go hide and run out seconds later screaming. It is the cutest. Carter on the ot...

Cade has always been on a low carb diet. With PWS the body doesn't process carbs the correct way, therefore they don't serve much a purpose in Cade. They make him very sluggish, tired, and craving more food. There are studies happening right now going into detail about how the Ketogenic diet, and Atkins are beneficial in those with PWS and could be a great option.  It was never about a number of calories for us. It was never OK, 1000 calories/ day and no matter how you get them just can't consume more. That just doesn' t sum things up in PWS. It is interesting to look at the families who have been doing these high fat/protein-low carb diets and how incredibly well their children look and behave. Diet is so important in any of us, what we eat affects the way we behave, look, and feel as well. I received a link to a website www.charliefoundation.org from another PWS family. If you can, visit the site and watch the video on the homepage. It is amazing.   So, ...

So I had so much blogging to catch up on that I never got around to....like I wanted to post the pictures of Cade navigating the Chick Fila play place...He did that so well! Or the cute pictures I had of my two little guys from Halloween last night...Or their surprises from the "Switchwitch"....   But... Instead of all my fun, exciting posts I have a sucky, not so exciting post. Go Figure! It is just one of those nights for me..well, actually it is one of those days, nights, weeks, shit its been months now... Cade's always made great strides in everything he has done...and he still does which is great! But, when he gets down, it takes so long to get back on his feet again. We need a freaking break. I don't think that will be happening anytime soon. It will probably never happen. If it is not one issue it will be another or a new problem that arises. I mean lets face it.   What started off to be just any other day turned bad real quick. Cade had a second s...