Skip to main content

Jake

Jake and the Never land Pirates, And Meeeee!

 
That is Cade's new show.
Oh and that is not Cade pictured above, that is Jake the Pirate! (HaHa)
 
 He still loves Dora and LOVES Diego..well he loves a lot. The kid just LOVES TV..(I know not a great thing), but hey I really have bigger issues to be concerned with at the moment. If Cade had his way, he would watch "his" shows 24/7. I absolutely love the way Cade has been singing along lately to his favorite shows. It is something rather new and even though for sure only I can understand him..I still love hearing him. He is trying and if his nose would be plugged for the words that he needed nose occlusion, his singing would sound wonderful.
 
Cade and Carter have been playing Hide and Seek for a couple weeks now on and off. They both love the thrill of seeking one another. Cade can never wait for Carter to find him. He will go hide and run out seconds later screaming. It is the cutest. Carter on the other hand hides and never comes out...even when Cade gives up. When it is Cade's turn to count he hides his eyes and usually stops around 4 and then says Here I Come! If I am around I make him count to 10, and he can do it! See TV can be a good thing. LOL.
I so love my boys and their games they play. They are so fun and full of life.
 
EEG is Wednesday bright and early in the morning. I will keep everyone posted on what we find out. Answers would be nice right about now. Those two seizures are forever burned in my brain. Blah!
 
Well, I am going curl up with my guys, it is just us tonite.

Comments

Post a Comment

Popular posts from this blog

Trust the process

So, today has been mentally taxing on me. From finishing up my Summer classes and final tests, to losing a dear, fellow PWS Mom friend, and then taking Cade to his first swim practice for the Special Olympics. I've shared extreme highs and extreme lows today, but as I unwind tonight I feel compelled to share this with whoever decides to read it.  Some of you may know this about me, but most probably do not. I have always felt a strong attraction to working with those with special needs. It just always felt right and from a young age I remember looking up local jobs and volunteer opportunities..always searching for something to fulfill that desire. I was actually enrolled in college for Family and Consumer Science and was planning to go into Special Education. I had taken the Parapro assessment and actively looking for Para jobs. Then I became pregnant for Cade and life had other plans. Given my role now to Cade, isn't it ironic? OK, so here is an e-mail I dug up from my in...
Post a Comment
Read more

Tired and Thankful

I am the parent of an amazing boy. He is 9. He is smart, funny, and happy. I am the parent of a child with Prader-Willi Syndrome... PWS is a complex developmental disability that results from a defect on the 15 th chromosome. Because of an abnormality in the area of the brain called the hypothalamus, these individuals face challenges in learning, behavior and controlling their appetite. The message of fullness never reaches their brain and they are always hungry. The intensity of their food drive can vary but all require support and understanding if/when they are exposed to food or they attempt to seek food. Food security must be considered and provided in all environments and at all times. While I am first Mom to Cade, just as importantly I am his advocate in every aspect of his life for his rare disorder. I am tired. Remaining humble and thankful for all of Cade's progress is so very hard in the midst of advocating. Some days I feel as I...
Post a Comment
Read more

Happy 5th Birthday Cade!

I can't believe we are celebrating your 5th birthday today. It seems like just yesterday I was awaiting your arrival. Boy, what a whirlwind it has been since then.  I have watched you go from a tiny, helpless newborn to a boy who already has his mind made up about just anything. You have taught our family so much about being strong and loving endlessly. You bring opportunities that I never imagined possible when I first held you in my arms. Life-long friendships have been made because of you. I will always encourage you, respect you, be your biggest fan, your advocate, and your supporter. I will always hope for a brighter, more accepting tomorrow. But above all, I will always love you for who you are.
Post a Comment
Read more