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Showing posts from 2015

Prader-Willi Syndrome Teacher Tips

This Friday Cade starts Kindergarten, with an excellent teacher once again...I am hoping for a great year! I am creating this post to have Elizabeth Roof's excellent video tool at my fingertips for his team to view.

Happy 5th Birthday Cade!

I can't believe we are celebrating your 5th birthday today. It seems like just yesterday I was awaiting your arrival. Boy, what a whirlwind it has been since then.  I have watched you go from a tiny, helpless newborn to a boy who already has his mind made up about just anything. You have taught our family so much about being strong and loving endlessly. You bring opportunities that I never imagined possible when I first held you in my arms. Life-long friendships have been made because of you. I will always encourage you, respect you, be your biggest fan, your advocate, and your supporter. I will always hope for a brighter, more accepting tomorrow. But above all, I will always love you for who you are.

WDSU interview at CHOLA

So, I was contacted a couple of weeks ago to do an interview with WDSU News Channel 6 and Children's Hospital. They wanted to do a segment on RSV awareness and Cade's personal story with RSV. The advocate I am made the trip to CHOLA and you can view our segment  HERE! I think it was put together really nice!  RSV was such a tough, trying time in our lives and I am more than thankful to have Cade here and doing so well today!  Check us out! 

The Ugly Truth.

Disclaimer: This blog post is featured on Jennifer Pastiloff's oh so amazing blog that can be found  Here ! COURAGE ,  DEPRESSION ,  GUEST POST THE BALLS OUT TRUTH ABOUT DEPRESSION. AUGUST 13, 2014 By Amy Ferris. This is what i know this morning post coffee pre wine yesterday my friend asked me, did you ever try it? yes, i said, yes, i tried suicide. obviously, this was all around the news of robin williams & his death. yes, i said… i was young, much younger, and so sad, i was so miserable & so unhappy & i felt all alone in the world. i felt like nobody knew what it was like, this damp darkness. everything was pitch black. there was no color anywhere. it was dark & lonely, and the best way i can describe how i felt at that time in my life was like being in the middle of a forest, and it’s eerily dark, and you don’t know which way to turn and so you take baby steps. teeny steps because you don’t know where you are, and you can’...