I'm posting tonite from my phone because I am too tired to get the computer. If words are spelled wrong I am sorry...can't use spell check on my mobile blog. Dumb! Anyways, as most of you know we have been home since Tuesday. Thanks to all of you who lifted Cade up in prayer. We really appreciate the support more than you know. He is getting better each day.I have been watching Cade like a hawk...his breathing is not totally normal yet. Guess it doesn't help that today he fell on his head and panted for a half hour or so. We were at my parents and my brother was singing this ridiculous song and Cade was standing on the barstool( I know, accident waiting to happen) i was too busy watching my brother and bam...poor guy fell. I feel like a horrible mom when that stuff happens, but it happens. I got another phone call today and it was very promising. It was a response to one of my many e-mails telling our recent incident and story. I will give more specific details as they come, but big media plans are in the works. I am so glad my voice is being heard and people are reaponding. This particular call today was from MedImmune, the manufacturer of Synagis. Very exciting! I can't wait to be the voice for Cade and many others! I feel good about this...we will see what my fight brings forth.
So, today has been mentally taxing on me. From finishing up my Summer classes and final tests, to losing a dear, fellow PWS Mom friend, and then taking Cade to his first swim practice for the Special Olympics. I've shared extreme highs and extreme lows today, but as I unwind tonight I feel compelled to share this with whoever decides to read it. Some of you may know this about me, but most probably do not. I have always felt a strong attraction to working with those with special needs. It just always felt right and from a young age I remember looking up local jobs and volunteer opportunities..always searching for something to fulfill that desire. I was actually enrolled in college for Family and Consumer Science and was planning to go into Special Education. I had taken the Parapro assessment and actively looking for Para jobs. Then I became pregnant for Cade and life had other plans. Given my role now to Cade, isn't it ironic? OK, so here is an e-mail I dug up from my in...
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