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5 Months old!

So, the inevitable happened. Cade's feeding tube was pulled out Monday. He is on continuous feeds..which means...he eats for 20 hours a day and can be off for 4. So, I knew I had a 4 hour stretch before he needed to eat again. I thought it would be just as simple as going to the ER and getting the tube put back in. Not so much. Little did I know that no ER in Houma or Thibodaux would put it back in. Cade has a TP tube which bypasses the stomach and goes straight to his small intestine. It has to be verified with x-ray for placement after being put in. It really is not that big of a deal to put in! It is put in just like an NG tube besides the fact that you push it a little further with a syringe and take an x-ray for placement...Voila! I could do it myself! So, from now on if and when the tube comes out again we have to go to a Pediatric ER. Children's Hospital or OLOL. Everything is fine now though! The tube is a bit of a pain, but it is not SO bad. Cade is still happy and thriving! I'm thinking that it is an alternate approach to surgery for now. I know it is very temporary, but I will keep it as long as allowed. I feel that he is doing too well to not. We know that his swallow issues will get better in time and he will no longer aspirate hopefully sooner than later. I'm thinking I will have the swallow study repeated in November when we make our trip to Fl. We can then go from there...I will not put Cade through surgery if I do not have to. Dr. Miller increased his GH and we got started on the new dose Tuesday. We have added a new therapist into our schedule. She is a wonderful speech and language pathologist! This is really important for him to have now that these feeding issues have come up. So, now we have PT twice a week, OT, and Speech. We are seeing great progress with our lil guy! I can't believe he is already 5 months old today. He has brought so much joy, and I am so very thankful for him.  

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