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Home sweet Home!

Well, after being in the hospital for 8 days and nothings getting accomplished, we are home. The doctors here just kept insisting that without the Nissen procedure and just getting the g-tube Cade would still aspirate and reflux. With that being said I was not putting Cade through surgery for something that would not fix the problem. Dr. Miller did not want the Nissen and I trust her 100%. I know these doctors here know what they are doing and are very experienced, for a typical child.  Dr. Miller knows PWS, they don't here. That just makes such a huge difference. So, we are home with the NG tube for now. The doctors seemed to think that it was OK that we wanted to come home and make our decision. The pulmonologist did not like the idea because of Cade's obstructive sleep apnea, he did not want something else obstructing his airway. I don't think we have much choice at this point though, so Oh well! He also sent us home with oxygen at night for Cade. The whole idea of that is ridiculous! We were in the hospital for 8 days and he never ordered the oxygen for him there. I asked several times about it, and he said no he didn't need it. Yet, when we make our decision to come home he all of a sudden feels Cade needs it...just doesn't make sense to me. Besides all of that, Cade is doing fine. He has gained weight, and is def. thriving. I just wanted to briefly update everyone on the latest....

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