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No news, No Plan...

I thought we had somewhat of a plan in place, but no. Doctors here are stuck on doing the Nissen along with gtube. There main concern is aspiration and even with gtube inserted Cade can still aspirate and reflux. It sometimes makes it worse! Dr.Miller says not to do it, these doctors say to do it and here I am not knowing what to do. One big difference...Dr.Miller KNOWS PWS, these doctors DON'T. They are doing the protocol for a "typical" baby. At the same time though what these doctors are saying does make sense and that is why I am confused as all hell right now. If that even makes sense. I am so dead set on all Cade's care being done in FL...I think I need to move! (Yeah right) Someone needs to get it together or we will be out of here AMA!!!

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