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Weight Check

Well, we had another weight check Thursday and Cade weighs 7lbs 1oz. So, he hasn't lost, but he hasn't gained much either. He is 7 weeks old and only 7.1 lbs. Of course that goes along with the PWS though, so it is only expected. Just about 90% of infants with PWS are not able to feed by bottle. They usually are tube fed for at least the first 6 months of life. It was a struggle for him to learn, and sometimes still is. Now, I see why most babies have the tube. They can get the adequate nutrients and gain weight without working so hard and burning calories. Anything that he does burn calories, and eating is a real workout. So, we are concentrating his bottles now to make each feeding 24 calories instead of 20. We will see how that works! By concentrating it the formula is thicker and he has to work harder to suck, which again burns more calories...Never knew feeding a baby could be so complicated until now. I am so ready for him to be able to start Growth Hormones and get stronger! We are leaving July 15th for Florida to see Dr. Miller, I can't wait!!! 

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