Swallow Study=Success!

Shands Childrens Hospital at UF in Gainesville!

Ok, so we are home from our crazy trip to Florida! Our flight schedules were nuts, but we managed. I'm so glad we crammed time for that swallow study because Cade passed! He still aspirated a little bit with thing liquids, but swallowed fine with Nectar thickened liquids. The process with swallow studies is like this- They try different consistencies to see what you can tolerate best. In Baton Rouge when Cade had his study he aspirated on thin, Nectar thickened, and Honey thickened liquids. There is one next step up which is pudding thickened, but obviously he can't drink something with the consistency of pudding out of a bottle. That study was about 5 weeks ago. In Florida he did relatively well with thin, just a little aspiration which says a lot! For now we will use something called Simply Thick to mix in his bottles and it will get his formula to Nectar consistency. He is also old enough to start solids, so we will be working on that too. This is great news, and a big step up. He is very congested right now, but not even that stopped him from succeeding. We are happy! On another note, we found out that Cade has PWS by deletion. I have another post on the details of the different types. That doesn't change anything. PWS is PWS...

Because things were so rushed we didn't get to do all the visiting we would have liked to, but at least we managed to make a huge accomplishment. Dr. Miller gave Cade lots of lovin and he gave her lots of smiles and laughs. There was another PWS family there that Dr. Miller introduced us to. You will never guess where they are from....Yep! Louisiana...So crazy! They are from Lafayette and have a sweet little girl. She is 2 months old and this was there first visit. I love new PWS friends. :)

So, now we are home safe and sound and ready to conquer this whole eating thing again. So glad to share my great news with you!!!!

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Our So-Called Life.

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