Ok I am updating from my phone so it is kind of hard. Cade had his sleep study last night then was scheduled for a swallow study this morning. Well, the swallow study showed that Cade was aspirating...silently-obviously because we had no clue. It is no longer safe for Cade to take bottles by mouth due to aspiration. If food continuously goes straight to his lungs he can get very sick. He will be getting a g-tube, which is surgically put into his stomach. We will work very closely with feeding specialists to get him to tolerate liquids better then eventually we can pull the little button out! He will also have another procedure at the same time called a nissen. It is to help with his reflux issues because reflux causes aspiration and aspiration irritates reflux. Main concern now is anesthesia. PWS patients have to be closely monitored with anesthesia and sometimes have trouble coming out. We are praying and hoping all goes well! I can update in more detail later when I can get to a computer. Nonetheless, we will remain positive and pray for the best...that is all we can do, right? Thanks for the wonderful support!
So, today has been mentally taxing on me. From finishing up my Summer classes and final tests, to losing a dear, fellow PWS Mom friend, and then taking Cade to his first swim practice for the Special Olympics. I've shared extreme highs and extreme lows today, but as I unwind tonight I feel compelled to share this with whoever decides to read it. Some of you may know this about me, but most probably do not. I have always felt a strong attraction to working with those with special needs. It just always felt right and from a young age I remember looking up local jobs and volunteer opportunities..always searching for something to fulfill that desire. I was actually enrolled in college for Family and Consumer Science and was planning to go into Special Education. I had taken the Parapro assessment and actively looking for Para jobs. Then I became pregnant for Cade and life had other plans. Given my role now to Cade, isn't it ironic? OK, so here is an e-mail I dug up from my in...
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