Visit with Chinese Medicine Doctor.

As many of you know, I have always been interested in alternative medicine. I always think it is best to take a natural approach, when possible. After all, God created our bodies to heal themselves!
The doctor said he will focus on Cade's spleen. He did a few acupuncture needles today and is prescribing some herbs. I am not sure what the herbal prescription will be yet. It will be a very small amount initially. He will be monitored, and it can only help him (and anyone for that matter). Some people are skeptical, and call me crazy. That's OK, and quite understandable. It is just not understood by some, and the benefits can't be appreciated. I feel like, Why not try anything and everything? I mean, my son only has the most complex genetic disorder. I know there are some people wondering when I will stop. Stop all the researching, the search for doctors, treatments, therapies, etc. The answer is I won't. I want to know that Cade is getting the best he possibly can. The best therapy, medical care, holistic care, herbs, supplements...whatever it may be. I am determined to stay on top of things. Cade's life will be fulfilled, and so will ours!
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Trust the process

So, today has been mentally taxing on me. From finishing up my Summer classes and final tests, to losing a dear, fellow PWS Mom friend, and then taking Cade to his first swim practice for the Special Olympics. I've shared extreme highs and extreme lows today, but as I unwind tonight I feel compelled to share this with whoever decides to read it. Some of you may know this about me, but most probably do not. I have always felt a strong attraction to working with those with special needs. It just always felt right and from a young age I remember looking up local jobs and volunteer opportunities..always searching for something to fulfill that desire. I was actually enrolled in college for Family and Consumer Science and was planning to go into Special Education. I had taken the Parapro assessment and actively looking for Para jobs. Then I became pregnant for Cade and life had other plans. Given my role now to Cade, isn't it ironic? OK, so here is an e-mail I dug up from my in...

Tired and Thankful

I am the parent of an amazing boy. He is 9. He is smart, funny, and happy. I am the parent of a child with Prader-Willi Syndrome... PWS is a complex developmental disability that results from a defect on the 15 th chromosome. Because of an abnormality in the area of the brain called the hypothalamus, these individuals face challenges in learning, behavior and controlling their appetite. The message of fullness never reaches their brain and they are always hungry. The intensity of their food drive can vary but all require support and understanding if/when they are exposed to food or they attempt to seek food. Food security must be considered and provided in all environments and at all times. While I am first Mom to Cade, just as importantly I am his advocate in every aspect of his life for his rare disorder. I am tired. Remaining humble and thankful for all of Cade's progress is so very hard in the midst of advocating. Some days I feel as I...

Hungry.

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