Below is a video of Cade having one of his sleepy spells. I have done research and it sounds like Cataplexy...We will hopefully get this figured out soon. I don't think it is seizure activity, but we will check to make sure. This has always happened since about 3 or 4 months old. I just thought nothing of it due to his low tone and daytime sleepiness. Now, that he is 14 months old, seems to be something more. He only does it the first few seconds.
So, today has been mentally taxing on me. From finishing up my Summer classes and final tests, to losing a dear, fellow PWS Mom friend, and then taking Cade to his first swim practice for the Special Olympics. I've shared extreme highs and extreme lows today, but as I unwind tonight I feel compelled to share this with whoever decides to read it. Some of you may know this about me, but most probably do not. I have always felt a strong attraction to working with those with special needs. It just always felt right and from a young age I remember looking up local jobs and volunteer opportunities..always searching for something to fulfill that desire. I was actually enrolled in college for Family and Consumer Science and was planning to go into Special Education. I had taken the Parapro assessment and actively looking for Para jobs. Then I became pregnant for Cade and life had other plans. Given my role now to Cade, isn't it ironic? OK, so here is an e-mail I dug up from my in...
Comments
Post a Comment