Our So-Called Life.

I have been so overwhelmed in life lately, and sadly my poor blog has suffered. What have I been overwhelmed with? Selling my home and buying another...Such a HUGE decision...Ahh! After our home being on the market for about 2 1/2 weeks it sold..yay. The purchase agreement was just signed today, so on to the next step with that. As far as us and a new home, we are pretty set on one we LOVE! We have looked at quite a few, and have realized that we can get an older home, with lots of room and in need of some updates OR a newer home that is a little smaller,but totally move in ready with nice features. It has been a back and fourth thing for us, but really and truly nothing compares to the newer home. Perfect neighborhood, great school district...top end of our price range, but I think it is worth it. Now, we just need the rest of our buying/selling process to go smoothly with no stops! On another note, I have two busy boys! Aside from our daily therapy visi...

So happy to announce that our eye surgery went very well! We were debating whether to go through with it since Cade started running a low grade fever Sunday. My gut said to do it, and thankfully everything went so smooth. His sats never dropped and luckily stayed at 100 % all night. We were home within a couple hours of recovery. I Can't wait to see his eyes when they are no longer bloody. He has been wearing some cool shades that strap around his head. We got them from Academy. It is so funny how Cade never messes with them and loves to wear them. He does have to stay out of the water for a couple of weeks, so that means no adaptive aquatics for now. Recovery seems to be very easy though. No real pain and should be clear in about a week.

These are my Parent's neighbors who arrived at Disney World today and decided to wear their One Small Step shirts to show support for our little Cade man! I bet they don't realize that today is the last day of PWS Awareness month and this is by far the best awareness tactic! I just know  one of the million people who was standing behind them in one of the plenty lines I am sure they stood in today read their shirt...some may have even googled One Small Step or Prader-Willi Syndrome to get more information out of curiosity. This is what PWS Awareness is all about! These guys are an awesome family who have helped us throughout our journey so much! Huge thanks goes out to the King family, You guys really ROCK !  

My Carter man had his Pre-school graduation today. These past years have flown by way too fast. Starting school seems so big. I am not ready. I know he is though, which helps me cope. I have already warned him that he will never ride the school bus and he was not happy about that. Hehe. I cannot put my baby on the bus with all those big kids..oh no! He misses the cut off for Kindergarten, so he actually will be going to Pre-K instead of Kindergarten which stinks, but oh well. His little performance tonight was great. His class walked in to the traditional graduation song with their little graduation hats on...Aw. Then they sang 3 songs for us. I love my sweet boy!

What a great way to kick of Prader-Willi Syndrome awareness month?!? May 1st began PWS awareness month and our Point of Vue debut was a success. I had no clue we would be on the cover so that was a huge surprise to see, well hear...I think I was the last one to get a finally see the magazine. I am so thankful we had the opportunity for the awareness that this has brought to our area. Those are the sweet pictures above and here is the article link below. POV Story. So much awareness, I feel so completely blessed.  Also, some more exciting news...Jake picked us up a copy of the local Fitlife magazine today because there is a story about Alison Desmore with PWS and race info as well. So, another way to gain awareness...which is exciting, but here is the other part. Jake says, there is a picture of a kid in there that looks just like Carter. It was an article pertaining to the Triatholon Carter participated in last year and it IS Carter! LOL We were so happ...

Come on, Will you?  Today and everyday for the next 16 days? Just click on this link, http://communities.challenge.gov/submissions/6800-take-one-small-step?notice=success#vote_submission_6800   and then that is it, DONE! It means everything to us and we thank all of you who are helping us out!

Dear Tanya and Keegan Johnson, Since, I have finally gotten back to normal here at home I can do what I have been longing to do since I arrived in Toronto and that is thank the both of you. I really just want to thank you from the very bottom of my heart for giving my husband Jake and I this opportunity. I know there are others that I owe thanks to as well, and Thank You to all who have helped make this possible. I remember getting the phone call saying I was the winner of the trip, and it was so surreal. I had so many mixed emotions...I was excited, nervous, happy, and thankful. I never win anything, and just couldn't even believe that I had actually won! So, then the planning began. I pleaded with Jake to please come with me. I explained how I needed him with me and that it would be so much fun. It took him a while...( a long while) to agree to come. He made sure I knew that this was only for me and that he really didn't want to go. He didn't want to meet other...