Things can go from perfectly fine to really bad so quick with Cade...this is one of the scariest aspects of his syndrome. I feel like I have no warning time that a sickness is coming on and then when I start seeing the signs it is already so bad. So here is a rundown of last night...Cade had a little rattle sound to him, so I figured before bed I would give him a breathing treatment. Seems that the treatment loosened up some junk and caused him to get choked. He couldn't cough hard enough to loosen anything. Then he started having a little spell where he gasps for air. He looks like a fish out of water. He can't get a breath. He has done this a few times before, but always recovered on his own very quick. This time was by far the worst. He needed help, so I had to call 911. He had calmed down a good bit when the Paramedics arrived, but was still working very hard to breathe and sounded like he had strider. We were discharged today being told that he has croup that was causing his airways to swell and have the difficulty breathing. After IV steroids he was much better. We are following up with a Pulmonologist and going to try to avoid this happening again! We came home with lots of meds and Cade is resting well for now. Hoping and praying this continues.
So, today has been mentally taxing on me. From finishing up my Summer classes and final tests, to losing a dear, fellow PWS Mom friend, and then taking Cade to his first swim practice for the Special Olympics. I've shared extreme highs and extreme lows today, but as I unwind tonight I feel compelled to share this with whoever decides to read it. Some of you may know this about me, but most probably do not. I have always felt a strong attraction to working with those with special needs. It just always felt right and from a young age I remember looking up local jobs and volunteer opportunities..always searching for something to fulfill that desire. I was actually enrolled in college for Family and Consumer Science and was planning to go into Special Education. I had taken the Parapro assessment and actively looking for Para jobs. Then I became pregnant for Cade and life had other plans. Given my role now to Cade, isn't it ironic? OK, so here is an e-mail I dug up from my in...
I am so sorry!! Poor Cade and poor mom!! I hope the rest of your week is nice and quiet!!
ReplyDeleteJill, I think Cade needs the Cortisol testing done. I never know he is getting sick and then wam bam we are in the hospital. Thanks for the concern..Cade is 100% better today. Steroids work wonders!
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